33 and a Third

September 7, 2009

61st Anniversary - and Big Changes

Filed under: Uncategorized — lp @ 7:23 pm — Digg this

Donato and Annunziata
My parents, some years ago

This Wednesday, Sept. 9, my parents will have been married 61 years. Woo!! Last year, we took them out for dinner. It’ll be fairly quiet this year. We have other plans on the go.

My parents will be moving out of their house, the same one they’ve been in since the 50s, to move to a retirement home not far from where I live in Toronto. They still live in the first house my father bought, when he came to Canada. (He came on his own for a few years, worked in Montreal and Sept Ilses, bought a home in the Niagara region, and called his wife and son to join him.) Since my dad has dementia, and a host of medical problems, we’re all started to get worried about the amount of stress on my mother. Since she can’t handle the house, garden, frequent trips to doctors and winter(!) on her own, they can no longer stay in the house. And since they have to move anyway, it makes perfect sense to move to Toronto to be closer to myself and my brother.

I find I’m both excited by them moving closer, and worried about the upheaval (particularly the effect it will have on my dad). The move is scheduled for early October. And, if all goes well, it looks like they’ve just sold their house, too!

No comments yet.

September 7, 2008

60 Years of Marriage

Filed under: Uncategorized — lp @ 6:02 pm — Digg this

My parents were wed on September 9, 1948… yup, that’s 60 years. Wow.

Ma and Papa

My parents wanted a very quiet celebration (so quiet, they didn’t want to do *anything*), but we convinced them to go out for dinner. Our little party included only immediate family, including my father’s sister. It was very nice, as we don’t often get the chance to all be together. Unfortunately, my niece wasn’t able to make it… she was getting ready for her trip abroad.

As many people are getting married when they’re older, I guess 60 year anniversaries will become rarer. Then again, people are living longer. Let’s see… Reid and I will be 91 in order to celebrate our 60th anniversary. Hmmm. :D

Comment by Debbie — September 8, 2008 @ 8:10 am

Wow, 60 years! Many congrats to your parents. :-)

Comment by Reid — September 8, 2008 @ 9:09 am

I am looking forward to our 75th! :-D

Comment by David "Is There A Facebook Fan Group For The Perrellas?" Barker — September 10, 2008 @ 10:32 am

Congratulations on 60 years and one day!

October 7, 2005

Italy!

Filed under: Uncategorized — lp @ 5:55 pm — Digg this

It’s taken me a long time to post about my trip to Italy. We’ve been trying to get the more than 250 pictures organized first. And I had hoped to annotate most of them, but that’s taking forever, so … here goes!


Mountains
It was an amazing trip. Not at all like a trip you would expect, touring around, etc. For the most part, we stayed in my mom’s home town, Incoronata, which is part of a larger town, Macchiagodena. Macchiagodena is located about half way between Rome and Naples, but away from the coast… in the mountains. Half way up a mountain, within the Molise Molise mountain range.


Castle
Although Macchiagodena is a good size, it doesn’t have much in the way of shops. They have a bank and bakeries, but no grocery stores (although they do have corner-store type shops), and certainly no clothes, shoe or jewelry shops. I’m quite sure they used to, but they’ve all moved to the larger cities/towns since everyone drives. They like driving… in fact, they seemed shocked when my mother and I would insist on walking more than a few blocks.


Zio Nicola and Zia Incoronata
We stayed with my mother’s cousin, Nicola and his wife. His daughter, Angela, son-in-law and grandson were there as well during the first week, as they were on vacation. They were all incredibly sweet, and Angela spent the week driving us all over, visiting people and places.


Macchiagodena
Incoronata, from my uncle Nicola’s balcony.


Here are some highlights from the trip:

The incredible beauty. Everywhere we went, the vistas were breathtaking. Villages and towns dotted the mountains. Many of them quite old and beautiful. Even the ancient, crumbling stone buildings were lovely to look at. They were my favourites, actually.


Uncle Antonio's family
Getting to know my family better. Although Reid and I met most of my parents’ cousins in the late 90s in my first trip, we spent so little time I really didn’t get to know them. This time, of course, I got to know them much better, and met many of my second cousins. Everyone seemed to speak the dialect, so I was very pleased to be able to converse well (and I got lots of compliments about it too!). I formed such a deep respect and liking for so many of them I honestly wish I could go back every year.

My mother saying: “Where did all these mountains come from???” I kept telling her they must have grown in the 50 years she’s been away. Growing up there, she didn’t really notice them. And seeing their beauty now impressed her so much. One of the larger mountain peaks,
Campitello, is a ski resort. We visited one day — up, up, up we went. And then we got to the ski hill, which was yet higher!!

Getting to know a little bit more about my mother and father from everyone. Much to my mother’s embarrassment, I got to hear how much of a little hellion she was. But best of all, was hearing folks talk about her parents, who I never met. The older folks spoke about my grandmother’s generosity with food and her open-door policy, and how she worked in the farm as hard as any man would. Everyone was very poor back then, but my grandmother had a little more than most because my grandfather was working in the US and sent money home. She died before I was born, and whenever they told my mother how much she resembled her mother, I could see a little flush of pride in her face. Everyone remembered my grandfather. He was very easy-going, and again, was very generous. My aunt would tell me how he would sidle up to her and put some money in her pocket, saying “Shhh, don’t tell anyone”. I heard others say that about him, too.


In Civita
We visited my mom’s cousin in Boiano, a much larger town. (It did have clothes, shoe and jewelry shops!). Boiano is located at the base of the mountain, where it’s typically much more humid (and the Incoronata/Macchiagodena folks lord it over them for that reason). The air is so different, they have trouble growing some things, like figs. My mother liked making fun of the Boiano accent, a little drawl when their words ended in ‘e’. Our Boiano relatives took us up to Civita, a small town half way up, the mountain behind Boiano. Many moons ago (more than 5 generations, I think), our Perrella clan came from Civita and settled in the Macchiagodena area. Civita is slowly emptying - very few families living there. More very old buildings, there, some of the houses were perched precariously on the cliffs.


In Capri
We did have one excursion: to the island of Capri through a tour organized out of Macchiagodena. We took a bus to the port in Naples, and from there, a boat to Capri. I’d never been to Naples and was extremely happy to go because it’s where my parents left Italy for Canada (separately — my dad left some years before my mother and brother). My father has NEVER been back. Capri was astoundingly beautiful. Sheer cliffs surround most of the island, with lots of grottos and interesting rock formations. The town itself is a jumble of gorgeous buildings, all seeming built on top of one another. It’s a very exclusive place: shops were incredibly expensive, and you can tell it’s a playground for the rich and famous. And … I got to see Mount Vesuvius off in the distance!!

Macchiagodena
Macchiagodena, from my uncle Antonio’s balcony


We had dinner with my dad’s cousin Antonio and his family a couple of times. Reid and I stayed overnight with them when we visited last time. They have two sons, Felice and Michele. I adore Felice, and this time I was so happy to meet Michele as well. I found myself staring at my uncle during dinner, and remembered doing it years ago as well. I couldn’t get enough of looking at him. Then I realized why… he reminded me of my grandfather who died when I was 10 (my dad’s dad). Not so much in looks as in mannerisms. I mentioned it to everyone, and they all said.. “Ya, we know… he’s just like his uncle!!” Wow.


Great-grandfather's house
We visited my great-grandfather’s house in Carapone, a few miles away from Incoronata, where my father was born. It’s one of those gorgeous, crumbling old stone buildings and I can’t quite get enough of it. It’s still in the Perrella family, relatives in Australia own it. There’s an old inscription above one of the doors we were trying to make out. It kinda looks like “1765″. Traditionally in Italy (still followed today), the sons remain in their father’s home. Their wives move in and the family grows. My great-grandfather had three sons, and with over 20 people in the house, he decided it was time to split the family. He put his son’s names in a hat and had one of the children pull a name, and that was the one who stayed in the house in Carapone. My grandfather and his brother moved to Incoronata, and shared an adjoining house.


Great-grandfather's house
We visited my Dad’s old home Other highlights were the tours we had of each of my parents’ old houses. My father’s old home, where my brother was born, is actually owned by my mother’s cousin, Petronilla, now. They kindly took us to every single room, but what was most surprising, was seeing some very old items that were my grandparents’ things. They pulled out an ancient spool for winding wool. It was very likely made by my father for his mother. The old, huge wine barrel was still there in the wine cellar, being used. And I almost cried when they showed my an old, ancient chest, saying they had no idea whose it was. It had the initials L and N on it - it was my grandmother’s.

My mother’s house is located in a “Coltillo”. That would be an arrangement of houses, clustered together around a little square. There’s a little lane way that leads down to the group of houses. Two of her cousins still live in houses there. The present owners of her old home kindly gave us a tour. We knew that this house had been changed very much, and they’re justifiably proud of the work they’ve done. My mother was ecstatic with seeing many of the old rooms. The kitchen was changed the least, it’s their next project. The old fireplace and oven are still there, and the walls have barely been touched. My mother brought some very old pictures of the house, and you can compare them if you like:

Ma's house, front
Ma’s house, front.
Ma's house, front circa 1950
Ma’s house, front circa 1950

Ma's house, back
Ma’s house, back.
Ma's house, front back 1950
Ma’s house, back circa 1950

Comment by David "Holy F- Cow" Barker — October 8, 2005 @ 11:31 am

Almost as cool as Serenity!

Highly cool story and pix! Especially the time comparisons!

Can’t wait to see the whole batch, but I can and will, of course.

Comment by Debbie — October 13, 2005 @ 1:49 pm

Yay, thanks for posting this!

Comment by Mary O'Flanagan — October 25, 2005 @ 3:39 pm

Hi,
Just visited your website.. just loved it. You could be related some how. My Mom and Dad are both from Incornata. Dad’s name is Barile, Moms is Vespoli. I caught the name Perella. My Aunt and Uncle and many cousins live there also. (Rocco and Domenica Perella). The pictures are just beautiful. I was there in 1981. I printed a picture of your family, I’ll bet any money my mom and dad know them. Small World.
Thanks again,
Mary (Barile) O’flanagan.
Broadview Hts Ohio

Comment by David "Ancient Lineage Of Hearty Northwest European Peasants" Barker — October 29, 2005 @ 9:28 am

So are you related to Mary?

Comment by MIKE (MICHELE) PERRELLA — November 29, 2005 @ 3:25 pm

VERY NICE WORK - KEEP IT UP
I WAS BORN IN INCORONATA IN 1948
AM THE SON OF GIUSEPPE PERRELLA AND
I KNOW YOUR PARENTS

Comment by Pasquale Fantone — December 12, 2005 @ 11:56 pm

Wow, nice work, although I haven’t had a chance to read it all. I sure will though, while I’ll be on vacation these upcoming holidays in Incoronata. And… I definitely won’t miss the opportunity to show Zia Incoronata (Zia Bionda), Zio Nicola and Angela, Tonino, Simone and Sonia what you have done. It’s just wonderful! I live in Montreal and I am your uncle’s wife nephew. I was just browsing, wondering what the internet had to say about Incoronata, Macchiagodena these days! Sure surprised me how close to home it got… :)

Comment by Luisa — December 13, 2005 @ 1:22 pm

Wow!! These comments have been fantastic!! Pasquale: Simone just loves Montreal! I miss that family.. I just adored Angela, and wish we could live a little closer together.

Comment by Valeria Barile — December 19, 2005 @ 7:50 pm

Hi Luisa,
I found your blog searching for my town’s images… I can’t explain how pleasant has been reading your description of things that was so obvious and “hidden” to me (like your mother asking about the mountains…). I actually live in Rome where I studied and now work, but I spent my first 18 years there and I still go there at least every three weeks.
Maybe we’re relatives, my grandma is Anna Maria Perrella (daughter of Rocco) and lives in “Barile”, and her mother was Giuseppa Vespoli… I will ask her.
Hope you’ll come back soon, so maybe we can meet!
Kisses, Valeria

Comment by Nadia Ciccone — December 24, 2005 @ 2:47 pm

Hi Luisa,
my father and I just visited your website and we thought it was absolutely great. My father comes from Macchiagodena, Contrada Santo Ianni, and we visit Italy quite often. When we go back home we always visit the “borgate” including Incoronata. We live in Toronto and are happy to see that second and third generation italian-americans are exploring their roots.
Keep up the great work and we looking forward to seeing the rest of the pictures.
Merry Christmas and Happy New Year!!!

Comment by Domenica Perrella — January 15, 2006 @ 5:02 am

Hello Luisa
My name is Domenica Perrella (nee De Cesare) and I
am the daughter of Pasquale De Cesare (dec) and Crescenza Gentile.
I was born in Macciagodena and grew up there until I got
married and moved to Australia. I knew your mother Nuziata,
I wonder if she still remembers me when I used to visit my great Aunty
Pia Barile (Zia Pia di Cich.)We had some good times together.
I married your fathers cousin Angelo Perrella (dec)who
was the son of Nicola Perrella and Teresa Barile.
The other night I was with my sister Angelina and my mother and we had
a look at your website and enjoyed it so much that
we were still on the internet late into the night.
It was really nice to see all the photos on your website,
it bought back a lot of good memories for us all.
If you come to Australia one day it would be nice to meet you.
Ciao from Western Australia

Comment by lp — January 15, 2006 @ 9:52 pm

These comments are just amazing!! I’ve been thrilled!

Comment by David "Mister Marple" Barker — January 16, 2006 @ 10:05 am

So is Domenica related to Nick of Swan Valley, or is that yet another line of the world famous (and world wide) Perrella family?

It’s really cool that these comments are coming from all over, one at a time as people discover this blog.

So when do the rest of the trip pictures go online, Luisa?

Comment by lp — January 22, 2006 @ 7:57 pm

Domenica and Nic are related, yes, (through marriage). Her husband, and Nic’s dad were brothers, and both my dad’s cousins. Her husband died a little while ago.

The trip pictures have been online for quite a long time - in with the rest of our family pictures on tnir. I tried to annotate them, but I don’t think it worked well. I really ought to come up with some better way of annotating them. But all 250 or so are there:

http://rae.tnir.org/pics/family/2005/2005-09-04-italy/

Comment by rae — January 23, 2006 @ 12:22 pm

Actually, the correctly poslitted URL would be http://pics.tnir.org/family/2005/2005-09-04-italy — not sure how you got the rae/pics part of that link. My fault, I’m sure. :-)

Comment by Angela Perrella — January 24, 2006 @ 9:29 pm

Luisa, I was born in Incoronata in 1958 and we moved to Montreal in 1964. I visit Italy every year to visit my Grandparents Pasquale and Petronilla Zannella. These are my Mom’s parents. My Mother, Maria passed away in 2002. My father is Giovanni Perrella son of Matteo Perrella (they used to call him ‘frattone’) and Angela Manocchio (both dec). Three of Dad’s brothers, Ferdinando, Ernesto and Biagio live in Incoronata. Uncle Ferdinando Perrella is the owner of Agriturismo Zampacorta. Uncle Ernesto owns the local watering hole, Bar Val Verde right across from the church, SS Maria Incoronata, downtown so to speak!! Although I live in Atlanta, Georgia most of my family is in Montreal where I grew up. I did so enjoy reading your story and viewing the photos. I have no doubt we are related and if Mom were here, I could ask. I will be sure to ask Uncle Mario Perrella who lives in Montreal. We are many and spread wide. 2 others of the Perrella siblings are in Western Australia: Elisabetta (wife of Sabatino Palermo) and Alessandro Perrella. I have often wanted to connect the dots even with those in South America. Thank you for sharing.

Comment by David "Just Wandering Around Cyberspace" Barker — January 25, 2006 @ 9:39 am

Well, the first one works just fine.

And thanks for not saying publicly,’Barker, you’ve known about this link for months, what, you can’t bookmark?”

Comment by Christine — February 7, 2006 @ 1:26 am

Great travel diary/blog. My grandmother was born in Macchiagodena and my uncle asked me to plan a trip there for his 75th birthday so we will visit this summer…

Comment by Georgi Hudson (Meyo) — February 24, 2006 @ 5:14 pm

I think it’s great that you are sharing your family, pics, and trips with us…Thank you! My Mom’s father came from Macchiagodena but we have no clue if there is still family there or not. I am just beginning to do family searches and would be grateful if you can give me a name or address of the local city hall or records building. His name was George Meyo, which is the Americanized version, of course. He came to Cleveland Ohio through Canada, from Italy. Any help you can offer would be sincerely appreciated!!! I am named after him.

Comment by Georgi Hudson (Meyo) — February 24, 2006 @ 5:14 pm

I think it’s great that you are sharing your family, pics, and trips with us…Thank you! My Mom’s father came from Macchiagodena but we have no clue if there is still family there or not. I am just beginning to do family searches and would be grateful if you can give me a name or address of the local city hall or records building. His name was George Meyo, which is the Americanized version, of course. He came to Cleveland Ohio through Canada, from Italy. Any help you can offer would be sincerely appreciated!!! I am named after him.

Comment by Amy Rector — April 28, 2006 @ 4:31 pm

Hello,
I was just browsing the web looking for information on my family and I came upon this wonderful travel log of yours. My grandmother and grandfather come from Macchiagodena. My grandfathers name is Midea and my grandmother is Buonomo. They moved to Pennsylvania when they were both young and started a family there. I don’t believe they ever went back. I’m sure that I still have some family there and I hope someday to visit. Thank you so much…

Comment by Jeanne — June 17, 2007 @ 9:34 pm

Hello,
Both my grandparents came from Macchiagodena they were Louisa Dell’Omo and Giovani Paolucci. My grandmother’s family were pharmacists there. My Aunt Rose Martella told me the Bishop would stay with them when he came to visit the church.
I love your travel log. Going there is one of my greatest wishes.
Thank you,
Jeanne

Comment by Angela Borges — July 10, 2007 @ 11:45 am

hi Luisa, hope you’re doing fine and that you still read these comments. My name is Angela and I guess we are also related… my mother was born in Incoronata (1938), her name is Angela Manocchio, her father was Felice Manocchio and her mother, Antonia Perrella. They moved to Sao Paulo, Brazil on 1950, where my grandparents died years ago. My mother and her brothers and sisters (Maria, Rosa, Giuseppe, Nicola, Giovanni) are still alive, and they all live in Sao Paulo. I moved to Germany years ago, but before I came here, I spent about 6 months in Incoronata by Ferdinando and Maria (Agriturismo Zampacorta)who is my mother’s cousin. I remember there were some relatives from Canada over there by that time, maybe your parents?? Unfortunatelly, I got to meet many many people, and I can’t remember all the names. You might wonder why I’m not Perrella, or Manocchio, but in Brazil they have this stupid thing to give the father name. I’d love to have my mom’s name though…
Anyway, just wanted to say hello to you, (my cousin??)
Wish you all the best, and if you want to keep contact.
Have a peaceful day

Comment by Robert Phillipo(DiFillipo) — September 22, 2007 @ 1:20 pm

My fathers family is from Macchiagodena. They immegrated in 1908. My father and brother have visited the village(1974) and it’s amazing to see images of our grand parents home village.

I hope you are in good health and thank you for your images.

I beleive we still have relatives in the village. They would be DiFillipo’s or Ricci’s.

Comment by Mark O'Rourke — January 8, 2008 @ 1:29 pm

Looking at your pictures reminded me of my visit to Macchiagodena in August 2007 where my Mother and Uncle are from. They came to the U.S in 1938. Her name is Michelena Miranda. Her mother was from Frosolone and Cesere was her name.
I believe my Mom has cousins still living in Compobosso.

Comment by Domenic DiMichele — June 22, 2008 @ 7:51 am

Hi my name is Domenic Dimichele both my parents are from Macchiagodena.My fathers name is Antonio son of Domenico he has two sisters Renata who still lives in Macchiagodena and Giovanini who now lives in Perth Western Australia My mother is Nicolina Palermo daughter of Pietro Palermo and Michelina Carlucci I t would be great to hear from any relatives that may be connected to my extended family keep up the good work

Comment by Michelino D'Itri — September 13, 2008 @ 11:40 am

Ciao, mi chiamo Michelino D’Itri, per puro caso andato sul tuo sito e sono rimasto affiscinato dalle vecchie foto. Io vivo a Macchiagodena e conosco il fabbricato dei tuoi parenti.Leggendo i commenti ne ho trovato uno di un amico che si chiama Pasquale Fantone, il quale รจ vissuto a Macchiagodena per qualche anno, pertanto colgo l’occasione per salutarlo. Buon lavoro e saluti da Macchiagodena.

Comment by Greg Dell'Omo — October 6, 2008 @ 12:19 pm

In November I will be attending a meeting at the University of Molise and plan to visit Macciagodena. My grandfather (on my father’s side) was born in Macciagodena on September 26, 1882 and his name was Louis Dell’Omo. His father (my great grandfather) was Dr. Michael Dell’Omo (born 1840 and died in 1896) was a physician (he graduated from the University of Naples). In addition to my grandfather, my great grandparents had three other sons–one a priest, one a singer, and one a pharmacist–and four daughters (all the daughters moved to the US). My grandfather came to the US (Red Bank, NJ) in 1905 and married my grandmother (Jennie Tempesta, daughter of Louis and Rose(Fabrizi) Tempesta) in 1909.

My father, also Louis Dell’Omo, grew up in NJ and was a pharmacist. He had two sisters (Fulvia and Josephine) and a brother (Aubrey).

I was wondering if anyone knows of my family in Macciagodena. I’m really looking forward to my visit and hope to connect with family members and experience the town. Thanks.

Comment by Antonio D'Itri — August 27, 2009 @ 5:51 pm

Hey, My name is Antonio D’Itri. I actually just came back from Macchiagodena. I visit almost every single year. My dad was born there and we live when there at Via Camposacone. I love Macchiagodena and have spent so much of my childhood there. Thank you so much for putting together this website.

Antonio D’Itri

Comment by Theresa Palemo in Ciccone — April 25, 2010 @ 1:10 am

Hello Luisa can you post you maiden name i did not quite get that . interesting I was born in Macchiagodena immigrated at 10 years old to thunder bay ontario canada, my maiden name Palermo my mon is Maria Zannella also from Incoronata her parents were michele zannella e luisa di lollo and my dad is Felice Palermo from caporio fu Donato e Teresa Narducci (my grand parents both dec) i know most of the people that wrote to you i am so pleased to hear from everyone , i married carmine ciccone figlio di (Antonio Ciccone ) e angela palermo now dec) my father in law is from santa maria and then he married a caporio and my mother in law’s uncle and his wife had no kids and took them in to stay with them a caporio..contrata santo stefano. my husband still has brother there and his sisters are here in canada .one here, and one in niagarafalls anna maria married cosimo dilollo ,,,and one brother
in montreal costanzo…we have been back many times in our macchiagodena it is beautiful little place and thevillages , we did restore our house in sant ianni contrata san giovanni that is where my dad moved from caporio to santo ianni after he came back from venezuela (long story)…i will show my parents the photos they will love them they have been back for 15 years now because my dad is not in good health

thanks again appreciae your work…..
theresa ciccone thunder bay ontario canada

my moms cousin married a perrella in montreal i believe you heard from Angie perrella

Comment by Theresa Palemo in Ciccone — May 6, 2010 @ 1:36 am

hello luisa, i came across your site it is beatiful, can you please tell me what is your mothers first name and your fathers too, and where are you residing now.
i was born in macchiagodena immigrated to canada at the age of 10, but i think i know of your parents, my mon is from incoronata her name is maria zannella and my dad from caporio felice palermo, and my husband is from caporio too, his name is carmine ciccone . i seen the comment from angela perrella her mom and my mom are cousins if you get to see this plese e mail me at i would like to keepin touch we still have a house in macchiagodena my husband goes at least once a year.
mamma1957@hotmail.com

Comment by Perrella — July 8, 2010 @ 1:28 am

It is a small world!

August 1, 2001

Upper Canada Lower Bowel Society

Filed under: Uncategorized — lp @ 12:45 pm — Digg this

Upper Canada Lower Bowel Society

Warning: this is a long one!

After all these years with Ulcerative Colitis, I finally found a support group that seems to be into the same things I am. Specifically: controlling the disease through diet. I don’t know what took me so long!

Although I don’t plan to ignore my doctor, I’ve had enough experience with the disease to completely disagree with what many doctors have told me: that food has nothing to do with it.

Background

With my first episode of UC, I just took steroids, as the doctor ordered, and it cleared up after a few months. The second episode was worse. My doctor, although nice enough, gave me practically no information about the disease at all. I had already researched it myself, of course, but he would tell me absolutely nothing, except: eat normally. Well, the steroids weren’t working, and things were getting worse. I decided I should follow the diet my GP put my kids on when they were sick with diarhea, the BRAT diet: Bananas, Rice, Applesauce and Toast. I must say, I ate a whole lot of toast. And my symtoms got worse and worse.

Finally, after Reid and I had a particularly horrible 5th anniversary (due to my illness), and beginning to realize that I may no longer be able to work, I blew a gasket and called my doctor in a frenzy. He just gave me another internal exam, told me to continue the steroids and sent me on my way. So I went to a naturopath. He put me on lots and lots of natural medication, which did nothing. But I will be forever grateful to him for two things: he suggested I go off wheat and eggs in case it had something to do with allergies, and he asked me if I ever heard of a book written by Elaine Gottschall called Breaking the Vicious Cycle. I know now the allergy business is silly, but it made me stop eating all that toast. And behold!! I kid you not — within 24 hours there was a HUGE difference in my life. Within 24 hours, I was, inconceivably, raking up leaves with my son and jumping in them, all afternoon, without having to run to the bathroom even once!! I still had a little trouble in the mornings and afternoons, but I seemed to have my life back!! I ran out and bought the book, read it cover to cover, had Reid read it, and agreed to try the diet. I stuck to the diet like glue. It’s called the Specific Carbohydrate Diet (SCD), and basically, one does not eat starches (bread, pasta, potatoes, etc.), sugar or milk (cheese and yoghurt is ok).

Within 3 to 4 months, all symptoms disappeared and I slowly came off the steroids. The scientist part of me said: this is not necessarily a cure, it could still be coincidence, but I’m sure the diet helped the symptoms. I went to another doctor for a 2nd opinion. He was absolutely wonderful. He explained all sorts of things to me, put me at ease about the increased risk of cancer, and told me: Of course that diet helps! But he did point out that the diet helps the symptoms, but is not a cure. At the time, I believed him, although now I’m not so sure. At least I had found a doctor that didn’t go crazy when I told him of the diet I was on. I decided I would switch doctors if I had another episode.

In August 2000, just as I started my 1-year sabbatical, I got sick again. (While I was at the Toronto Exhibition with my family, of all places, I had to run to the bathroom and I knew right there and then that it was back :( ) I went to my doctor, we tried different medications, and ended up on steroids yet again. At first, I went on the diet again, but I was convinced it wasn’t a cure, so I didn’t stick to it very carefully. After going on mega-doses of steroids, the illness cleared up twice: once at Christmas and once at Easter. Funny. Both times I ate way too much sugar (eating all those cookies I baked at Christmas, and eating all that chocolate at Easter.) Of course, the illness came back. In May, I decided that if I had been on the diet, I probably would have gotten better. So I went back to the diet: although perhaps not whole hog. But as of a few weeks ago, I decided I need to really stick to it. I’ve been ill for a year now. And each successive episode has gotten worse.

Support found at last!

I had lent my book, Breaking the Vicious Cycle, to a girlfriend but needed a muffin recipe out of it. So I started searching for SCD muffin recipes on the web and found a wonderful SCD site. As a result, I joined a mailing list for people on the diet, and also make contact with people in Toronto on the diet. They call themselves the Upper Canada Lower Bowel Society. Just love the name!! It’s wonderful to know that I have others I can speak to about the disease and diet.

I’ve also become a somewhat of a proponent for reducing evil complex carbohydrates from ones diet. (This from the woman whose youngest son eats nothing but complex carbs and protein. It drives me crazy!) I really do think complex carbs are evil. Not just because of my illness now, but because I was diabetic during my last pregnancy. It made me realize how many complex carbs the general public eats. According to the Canadian Food Guide, someone my size should have 6 servings of grain products a day. Do you know how little 6 serving is???? That’s 6 slices of bread!! By having a hamburger and fries, you’ve had 4 to 5 servings already!!

All that said, one may ask me what my favourite foods are: Pasta! Pizza! Sushi! Bagels! Chocolate Cake!! But I sincerely hope I have the strength to not eat these foods at all for a couple of years, and after that only in severe moderation. (Those of you who know me well are laughing now, saying “Yah right!!”) But I can hope!

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